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Epilepsy links

  1. BOOKS AND VIDEOS
    An assortment of books, pamphlets, manuals, and videos designed to increase your understanding of epilepsy and address your important concerns.Go to site »
  2. EPILEPSY FOUNDATION E-COMMUNITIES
    Go to site »
  3. EPILEPSY FOUNDATION OF AMERICA
    The national voluntary agency dedicated to the welfare of Americans with epilepsy and their families.The organization works to ensure that people with seizures are able to participate in all life experiences and to prevent, control, and cure epilepsy through research, education, advocacy, and services.
    Go to site »
  4. EPILEPSY INFORMATION HOTLINE
    The Epilepsy Information Service will answer questions about a variety of issues around epilepsy. The toll free number is 1-800-642-0500.
    Go to site »
  5. EPILEPSY OUTREACH PHONE LINE
    Boston Medical Center Pediatric Neruology has created a telephone line in order to help promote community awareness, education and advocacy for children and their families in coping with seizures and or epilepsy. The target audience includes children who have had one or more seizures or epilepsy and their daycare and school personnel, primary care providers, parents and relatives.

    We understand that families, school personnel, and affected children may have many questions about epilepsy and seizure evaluations, management, and medication treatments, as well as about the social, educational, and emotional impact of having seizures or epilepsy. If you have a question, please call. We're here to help. Our hours are Monday – Friday, 9 AM - 4 PM.
    The telephone number is 617 733 8355.Go to site »
  6. EPILEPSY.COM
    A source of information, community, and resources aimed at each individual's experience with epilepsy. Features information about epilepsy and furthers the vision of the Epilepsy Therapy Development Project to create a powerful resource for everyone involved in caring for and treating people with epilepsy.Go to site »
  7. EYC: THE SPOT FOR YOUNG PEOPLE WITH EPILEPSY
    Learn more about epilepsy, living with epilepsy, having a brother or sister with epilepsy. Connect with other young people, ask questions and find out how you can get involved raising awareness and eliminating stigma about epilepsy.Go to site »
  8. MA AND RI EPILEPSY SUPPORT GROUPS
    Support groups offered by the Epilepsy Foundation of Massachusetts and Rhode Island.Go to site »
  9. MY EPILEPSY DIARY: FOR SEIZURE MANAGEMENT

    By creating a My Epilepsy Diary profile you can track whenever you experience a seizure, side effect, mood change, or other personal event related to your epilepsy.

    You can also track all your medications and dosages, even for non-epilepsy medications and vitamins. You can even set up email or text reminders to take your medications!

    The program also let you print out a report to take your doctor a complete, organized, and easy-to-read record of your recent epilepsy history, as well as long-term trends that show how effective your treatment has been and whether it may need to be changed.

    Go to site »
  10. TOWARD INDEPENDENT LIVING AND LEARNING (TILL), INC.
    A not-for-profit human service agency, established in 1980, which provides a comprehensive range of services throughout Massachusetts and New Hampshire. Our innovative services  meet the needs of individuals of all ages with mental retardation, physical handicaps, learning disabilities, autism spectrum disorders, Asperger's Syndrome, emotional problems, brain injury, behavioral health and other developmental disabilities.Go to site »
  11. YELLOW PAGES FOR KIDS
    Find educational consultants, psychologists, educational diagnosticians, health care providers, academic therapists, tutors, speech language therapists, occupational therapists, coaches, advocates, and attorneys for children with disabilities on the Yellow Pages for Kids for your state.Go to site »